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How did I survive all this - being suddenly ill in my early twenties?

People like my family and friends, particularly my immediate family who navigated the transitiions and paperwork, and also my bandmates, roommates, and handful of tight friends.
Photography, particularly the self expression it allowed.
And, music, particularly making music. The self expression, the pull to perform, and go go go.

9 - Chic with Cane at the Plum Street Pub, New Brunswick

My bandmate leaned in and whispered, “You know, they are calling you ‘the hot chic with the cane’”. He was referring to the members of a Midwestern noise band on the bill we were also playing. My mouth twisted. “Oh,” I said. I thought, “Ugh!” and “Great!” simultaneously.

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Navigating Music

Navigating Music

Jared and I exchanged text messages - I encouraged Jared to enjoy the show and not worry about us (as best as a flip-phoner can text). I knew he'd be respectfully half-distracted as he wondered how we were doing. Navigating "taking turns" and remaining fair in family life is a big thing for us. I wanted to let him know I was happy, and especially happy if he was happy.

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Warsaw Village Band / People's Spring

My love for international folk went on, as we searched for free concerts in every city we lived in and visited. And then was later supported when we lived in NYC and had access to the wonderful music collection at the New York Public Library for the Performing Arts. Those were some amazing stacks. A candy store. Oh, I do miss that library. We made friends with others who loved folk music, exploring together. 

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Huggy Bear / Taking the Rough with the Smooch

I had two friends (men) who played instruments, actually played, in fact, one played acoustic guitar really well. Ranging from very pretty, very sweet to very intense stuff. Anyway, they liked me. I liked them. They liked that I didn't know how to play. We spent days and days in the basement or garage making noise. I played in many bands with those guys. Some lasted a month, some lasted years. ISCKYA and TENS Unit were the first two bands, inspired by that raw girl/boy revolutionary spirit of Huggy Bear.

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Fugazi Repeater

Fugazi Repeater

By the time I found Fugazi, I was also a burgeoning feminist (remember that egalitarian thing). Very few bands I knew of included women. I'd loved Blondie, Cyndi Lauper, and Madonna. However, there were no musicians I knew of that combined "in reach and therefore human and real seeming" (Cyndi is pretty damn real, though) with "woman".

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